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John’s Weekly Diary 21 – Bureaucracy, the NHS, a cough, a death, a long walk

… SORT-OF CONTINUED FROM DIARY No 20 …

I have been posting a diary supposedly about life in Britain during the coronavirus pandemic – focussing on the everyday amid the historic.

But it took a sidetrack when, instead of COVID-19, I developed some unknown kidney infection or damage or/and calcium imbalance and/or… well… something. No-one has yet found out what is wrong.

So this strand of the blog will now become a more general diary until I get bored with it or it meanders even more pointlessly than normal like a dildo lost in a jellyfish.


A typical 1888 cough syrup (courtesy of Stephen O’Donnell)

SUNDAY 14th JUNE

I had a bad, hacking cough: probably nothing to do with coronavirus.

I took a Tyrozet tablet.

Stephen O’Donnell in Glasgow reminded me of the type of cough linctus they had in 1888 with alcohol, cannabis, chloroform and morphia “skilfully combined with a number of other ingredients”.

Presumably, if that didn’t cure your cough, at least you would be unaware you had one.

Forget the telephone consultation – It’s a face-to-face meet…

MONDAY 15th JUNE

As is now normal, overnight I woke up about six or eight times – basically, at least once every hour – with my throat parched dry, desperate to drink water.

When I left hospital just over a fortnight ago, the Kidney Man told me he would treat me as an outpatient. Then, a week later, I got a letter saying it would be a face-to-face consultation at the local hospital.

Forget the face-to-face consultation – It’s on the phone…

Then, another week later, I got a text saying that, because of the COVID-19 virus, they were changing the face-to-face appointment to a telephone consultation. I joked to a couple of people that, as the NHS is a vast bureaucracy and all vast bureaucracies are a mess, they were bound to phone me up today and ask why I was not at the hospital.

Today, after over an hour waiting for the call, I phoned to check that all was OK.

The appointments people told me: “He’s not actually ringing absolutely everybody. Some patients he’s looking up on the system and, unless he feels he absolutely has to speak to them, what he’s doing is dictating a clinic letter which will go to your GP and you will get a copy as well… It’s a little bit of a grey area.”

Fair enough.

About half an hour later, the Kidney Man phoned up because he had been expecting me to go in for a face-to-face consultation and wondered why I hadn’t turned up.

Fair enough.

He told me that the Petscan I had about two weeks ago showed nothing abnormal and they still didn’t know what was wrong with my kidneys. So a blood test would be arranged and I definitely had to come in for that, even if I got a letter or text saying I should not.

After that, I went out (perfectly legally) to South London to see my Eternally Un-Named Friend. It was the first day when face masks HAD to be worn on public transport in England. So I wore a face mask on the mostly empty trains.

We walked along the River Thames from Greenwich to the O2 Millennium Dome – a long walk on what (I had forgotten to check) was a Very High Pollen day. I felt hot and sweaty and slightly light-headed and, for my feet, the walk became a plod.

Nothing to do with the pollen or the company. Something to do with the kidneys, I think.

View of Canary Wharf from near The O2 Dome (Photograph by My Eternally UnNamed Friend)

The south (well, really east) bank of the Thames between Greenwich and the Dome has become mostly a post-industrial wasteland which is being flattened or is already flattened for high-rise flats, with some already built. My Eternally UnNamed Friend found some sort of Wordsworthian Romanticism in the open spaces and vistas. I thought it just looked more like a post-apocalyptic landscape.

At 11.15pm, back home in Borehamwood, as I was about to go to bed, sniffles, sneezes and an itchy right eye started to kick in. Over the last few years, I have tended to get hay fever fairly late at night and almost always after dark. What is that all about? What on earth are the flowers doing at 2315 at night?

Well, the news took me a bit by surprise…

TUESDAY 16th JUNE

The man whom I called ‘George’ in my hospital diaries died yesterday. I know this because my friend Lynn spotted his obituary in various newspapers today and – very impressively – guessed it was the person whose identity I had (I thought) disguised in my posts.

I then (perfectly legally) went to East London by train to see writer Ariane Sherine and her daughter in their back garden (well, back decking).

On the way there and back, I wore a face mask in the mostly empty train carriages. There were some other passengers. But we all seemed a bit half-hearted about it as we were all seated so far apart.

The government’s figure for total coronavirus deaths in the UK is now 41,969… Up 233 in the last 24 hours.

Me in my lost hat – Maybe not a great loss…

WEDNESDAY 17th JUNE

I went to Tesco’s in Borehamwood in the afternoon to buy a hat to protect my bald head from the sun. I lost my previous hat two days ago, somewhere by the post-apocalyptic River Thames.

I was hot and sweaty (despite having had a bath at lunchtime) and light-headed.

Ariane Sherine texted me:

“I’ve made a few jokes about you in my new book. I thought I should run them by you to check you’re OK with them.”

I replied: “I will be OK with them. You can say anything you like about me. I fancy being described as a dishevelled, shuffling, shambling mess. I would quite like to be described as a Dickensian character rotting slowly in my wrinkly skin as the dust gathers in my ears. I always think it is better to be laughed at rather than be laughed with… It is much more memorable. People forget jokes but remember OTT characters… Perhaps you could say something like: He was having a mid-life crisis at least 30 years too late, with fantasies of Baby Spice in a bikini rolling around in tiramisu.

Alas, the book is a serious – though populist – non-fiction work and the reply I got was:

“We are at the proofreading stage, so I can’t add anything, but thank you for being such a good sport.”

My heart sank. I quite fancy being a badly-dressed Dickensian character. But I have never aspired to be a sport.

The government’s figure for total coronavirus deaths in the UK is now 42,153… Up 184 in the last 24 hours.

The ever-admirable kick-ass vicar Maggy Whitehouse

THURSDAY 18th JUNE

Last night, in bed, I had about an hour of feverish hot temperatured forehead and a hacking cough.

I think I may be turning into a paranoid hypochondriac. Or is that tautology? Who cares?

Meanwhile, admirable kick-ass vicar Maggy Whitehouse (I blogged about her in 2018) posted on her Facebook page:


Well that’s a first… I’m on the prayer line this morning and the first caller was a man who said he was in social isolation and lonely. He turned out to be calling from his bath… and was making somewhat too-enthusiastic noises during the prayers. He did say, “Thank you,” and that he was feeling a lot better now afterwards. Obviously, I have to report him to the boss… but I think I should have charged him a very large amount of money… and fortunately, I’m just trying not to giggle.


This seemed bizarre and unique to me but apparently not. Comments on Maggy’s post included:


– I had a fair few of them while on my Samaritans hotline 😉
– I used to work for a crisis helpline similar to the Samaritans and we had many a call along those lines…
– I used to be a Samaritans listener… we had similar calls…
– Sounds like the time I was a Samaritan on duty on Christmas Day. The tale was different – at the end he learnt it was seen through and it was good he had opened his ‘Christmas Present’ quickly!!


The government’s figure for total coronavirus deaths in the UK is now 42,288… Up 135 in the last 24 hours.

FRIDAY 19th JUNE

Original edition. Lots of good advice.

In 2012, Ian Fox published his excellent book How to Produce, Perform and Write an Edinburgh Fringe Comedy Show which was edited by fellow comedy performer Ashley Frieze.

Now, with the coronavirus pandemic causing chaos in comedy and entertainment generally and the Edinburgh Fringe effectively cancelled this year, the dynamic duo have published a follow-up:

How to Write, Perform and Produce a Cancelled Edinburgh Fringe Show: A complete guide on how to not write, perform and produce a show at the Edinburgh Fringe.

A new book for the new COVID-19 era.

The book is a must-read. Handy tips include:

  • When and how to cancel things

  • How not to travel to Edinburgh

  • Writing a show that is cancelled

  • How not to get a review for a show that isn’t happening

And it’s all in aid of a good cause… The authors have suggested, for every copy purchased, a donation to the Trussell Trust which supports a nationwide network of food banks.

The book was free until yesterday and may be free from tomorrow in one form or another.

Ashley Frieze says: “The ongoing pricing seems to be some random mystery concocted by Amazon.”

Ian Fox: “Truthfully, we didn’t realise you couldn’t just do free Kindles anymore.”

The government’s figure for total coronavirus deaths in the UK is now 42,461… Up 173 in the last 24 hours.

If something is worth doing, it’s worth doing in triplicate…

SATURDAY 20th JUNE

As of today, I now have three letters – all confirming my Monday face-to-face appointment at the hospital.

It is to have another blood test, so it is unlikely it will get changed to a telephone call.

But never say never…

Never underestimate bureaucracy…

An article in The Guardian yesterday suggested that, at the height of the current coronavirus pandemic, deaths in the UK may have been 64% higher than reported because, part of the way through the current run of the pandemic, the government changed or, at least, the bureaucracy was able to re-define the type of deaths included in the statistics.

But the worst news of the week is that today I discovered – who knew? – that Tyrozets have been discontinued following a challenge from the UK’s Medicines and Healthcare Products Regulatory Agency (MHRA) over whether the use of an antibiotic in throat lozenges is “clinically relevant”.

Who cares? They worked.

Does anybody know where I can get hold of some 1888 cough syrup “with alcohol, cannabis, chloroform and morphia skilfully combined with a number of other ingredients”?

… CONTINUED HERE

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John’s UK Coronavirus Diary – No 9 – Personal stories in a strange new world

… CONTINUED FROM DIARY No 8

SUNDAY 19th APRIL

Romanian entertainer Dragos Mostenescu posted another video of family life in lockdown in London:

The latest figures for coronavirus-related deaths in UK hospitals are 592 deaths in the last 24 hours (down from 888 yesterday)… So now 16,060 in total.

My friend in Central London, who has a close friend with coronavirus in a hospital’s Intensive Care Unit updated me on his current situation:

“I spoke to the hospital earlier. Things are not going well since yesterday. They have been reducing sedation over recent days but he was not coming round, so they stopped all sedation last night… but he’s still not waking up. ‘Neurologically unresponsive,’ they said just now. CT scan of brain later. Today will be a tough day. I am full of fear.”

MONDAY 20th APRIL

(Photo by Luke Jones via UnSplash)

A friend who lives near Milan tells me that the Italian government is going to start easing some restrictions and trying to re-start things on May the 4th. I suggested on Facebook that the Italians must be big Star Wars fans… I was told by someone that this did not work when translated into Italian.

In the last 24 hours, there were 449 hospital deaths linked to coronavirus (down from 592 yesterday)… So now 16,509 in total.

Lynn Ruth Miller, an American living in London – who recently contributed a piece to this blog Diary – writes:


I am an 86-year-old woman. I am a performer whose life revolves around travelling throughout the world to do my act. I am in comparatively good health. I live alone. I have no children, no partner, no family. Because I am in a third floor flat, I have no dog or cat. I am in relatively good health with no debilitating pre-existing conditions.

Governments the world over have told their populations that all people over 70 must go into social isolation. That means I must stay home without visitors and talk to no one face to face. If I need exercise I should walk around the garden. But I do not have a garden.

This social isolation is robbing me of my future. Let’s face it. 86 is the beginning of old, old age. Every day my horizons are less distant. The end of my life is nearer. Each moment that I am able to live a purposeful and rewarding life is especially precious to me because those moments diminish every day. They diminish for us all, of course. But the reality is I have less time left to enjoy them than someone who is younger.

Since March 15 when we were advised to stay inside, I have not been face-to-face with a living, breathing human being. I have not held anyone’s hand; I have not hugged a friend or petted a puppy.

I do not want to get sick. I do not want to make anyone else ill. But I do want to smile at someone who smiles back. I want to tell a joke and hear the laughter. I want to feel a human presence. Live-streaming on a computer screen doesn’t do it for me.


TUESDAY 21st APRIL

Wot’s this ear? It’s some wag’s image of van Gogh

Uncertainty continues about whether people in the UK should wear or not wear masks when out. Jokes have appeared online. One source-unknown wag visually pointed out that Vincent van Gogh would have had problems attaching even a simple face mask.

The real world gets even more surreal than that. The price of oil has turned negative for the first time in history. This means that oil producers are paying buyers to take the stuff off their hands because demand has dropped so sharply and suddenly – because lockdowns across the world have kept people in their homes – that the producers’ storage capacity could run out in May.

The number of coronavirus-related deaths in UK hospitals in the last 24 hours rose by 823 (it was 449 yesterday)… So now 17,337 deaths in total…

WEDNESDAY 22nd APRIL

One friend of mine is taking no chances…

The debate on whether to wear face masks or not continues in the press and one friend of mine is taking no chances by wearing full serious face mask and goggles when she goes out. This is 100% true.

Her equipment may seem over-precautious and certainly likely to keep strangers in the street at a socially-acceptable distance. But the virus can enter the body, it is said, through your mouth, nostrils or eyes, so only wearing a flimsy mask covering mouth and nose would leave your eyes open to attack.

Thus her choice of full headgear makes total logical sense.

THURSDAY 23rd APRIL

Correct social distancing is marked on the floor

Most of the large chain food stores now have positions marked-out on the pavement outside and the floor inside to help keep social distancing (2 metres) from each other.

My friend who lives in Central London updated me on her friend who is in Intensive Care in hospital…


It has been a bumpy old week. From being told by a doctor on Sunday that we should prepare for the worst because my friend was not coming round from two weeks of deep sedation and that a CT scan of his head would assess possible brain damage, to being told that the CT was thankfully clear. 

But then he needed several blood transfusions as his haemoglobin kept rapidly dropping. The doctors were looking for an internal bleed somewhere, but could not find one. So that was all very worrying. 

Then yesterday the ICU consultant said my friend was doing as well as can be expected and seems to be following the same course as others who are further along (a week or two) in the COVID-19 disease process. He clarified that As well as can be expected means still critically ill. He also explained (perhaps unnecessarily) that they are literally stopping these patients from dying every hour of every day… A ‘good’ day for a patient means “still alive” and they don’t want to give false hope, even when small forward steps are logged…

However, today when I spoke to an ICU nurse, some small forward steps had been logged. Although still on a ventilator, he is now initiating his own breaths and seems to be holding his own. But, a week after removing all sedation, we are still waiting for him to come round. Last Sunday he was “neurologically unresponsive” which sounded pretty endgame-ish. However today I’m told that his pupils are reactive and that he has a good cough (which, in ventilated patients, is apparently a good thing). Small steps.


The total deaths related to coronavirus in UK hospitals now stands at 18,738 – a rise of 616 deaths in the last 24 hours.

FRIDAY 24th APRIL

Last night, BBC TV’s Big Night In show, lasting all evening, combining the charity know-how of Comic Relief and Children in Need and featuring a mega-star-studded array of names including Prince William, the presumed future British King, raised £27 million for charity.

Bizarrely, Captain Tom raised more than £28 million by walking round his daughter’s back yard. We live in strange times.

Also last night, “somewhere in Southern England”, my friend Lynn shot a video which shows that cabin fever has hit the local Brits in total lockdown…

In a press briefing yesterday, President Trump suggested that sunlight or ultraviolet light could be put inside the body – or disinfectant injected into the body – to treat coronavirus. After a backlash, particularly from bleach manufacturers who issued statements telling people not to drink their product, the man with his finger on the nuclear button claimed he was being sarcastic and/or joking, despite the video clearly showing he was being serious.

My friend in Central London spoke to the ICU consultant again today.


The consultant is cautiously positive about my friend’s progress on the ventilator. He is initiating breaths for himself, and the ventilator helps to fully inflate his lungs. His ventilation requirement is now less than 50%, which is still life support but a lot less than it was even a week ago. This whole process is called ‘weaning’ from the ventilator and is done by minuscule reductions.  

He also briefly opened his eyes this morning before drifting off again. The consultant expects it will still take some time for him to come round properly because his lack of kidney function means the sedation is still hanging around, even a week after they stopped it. Some COVID-19 patients are taking weeks to wake up, he said. 

I asked about the previously mentioned tracheotomy, but they’ve decided not to rush the decision. He said the option with the best outcome would be extubation (removing the breathing tube completely and stopping ventilation) when they are more confident that he can breathe on his own. However, a tracheotomy for continued longer-term ventilation might still be necessary although not ideal, as patients who go this route have a worse prognosis. The consultant said they will see how the weekend goes and review on Monday.  

As always, it was stressed that my friend is still critically ill, needing life support, and that there is no guarantee of a good outcome. But the consultant added that his team does think my friend has a chance of recovery, otherwise they wouldn’t still be fighting for him…

So I see this as a glimmer.

Another friend I know – an anaesthetist at a local hospital – agreed that this all sounded encouraging. However he cautioned that, even if he does make it out of hospital, my friend’s lungs and/or kidneys might be permanently damaged. A high proportion of long-term ICU patients have psychological and psychiatric problems such as Post-Traumatic Stress Disorder and depression (not to mention the much-documented ‘ICU delirium’). There is also a high risk of cognitive impairment. And the road to recovering some level of normal life will be measured in years, not months, with an army of physio and rehab support. He will need 24/7 care for months and obviously somebody living-in when he returns home. So there is a glimmer. But. at the same time… fuck!


UK hospital deaths related to coronavirus went up by 684 in the last 24 hours, making total deaths 19,506. Deaths in the US, where President Trump, despite figures to the contrary, says they are over the peak, have gone over 50,000. Globally, deaths are around 195,000.

Meanwhile, Captain Tom got to No 1 in the hit parade with his rendition of You’ll Never Walk Alone.

SATURDAY 25th APRIL

The Guardian reports today on Mark Grenon: “The leader of the most prominent group in the US peddling potentially lethal industrial bleach as a ‘miracle cure’ for coronavirus wrote to Donald Trump at the White House this week… Grenon styles himself as ‘archbishop’ of Genesis II – a Florida-based outfit that claims to be a church but which in fact is the largest producer and distributor of chlorine dioxide bleach as a ‘miracle cure’ in the US. He brands the chemical as MMS, miracle mineral solution’, and claims fraudulently that it can cure 99% of all illnesses including cancer, malaria, HIV/AIDs as well as autism.”

The number of coronavirus-related deaths in UK hospitals in the last 24 hours was 813, making a total of 20,319; we are only the fifth country to go over 20,000.

Meanwhile, in Britain, rounding off the week, Romanian entertainer Dragos Mostenescu’s latest video shows he has found it is easy to get distracted when homeschooling his children in locked-down London…

… CONTINUED HERE

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