Occasionally I start a blog with a variation on:
What’s the point in having a blog if you can’t be self-obsessed?
This is one of those blogs. But we don’t get to that bit until towards the end.
At the time of writing, England is almost out of Covid Lockdown.
On June 21st, all restrictions may (or may not) be lifted. The chaos caused has been, of course, even worse in large bureaucracies like the NHS.
This morning I got an email from someone I know.
“If you think you are having a rough time with the NHS,” it said, “below is a cut ‘n’ paste of an email from my son about his wife, Sue.”
I have changed the names to protect their privacy. The email he attached read:
Hope you are doing OK.
All OK here – except that Sue had an interesting unexpected phone call last week. The number was not recognised, but she answered because it was a local number.
The person introduced himself as her consultant and said it was urgent that he speak to Sue Simpson.
Sue said she was speaking, then the consultant asked her why she had not attended any of her appointments over the last 18 months, at which point Sue pointed out that they had cancelled her three booked appointments and she had not received any more.
Last January Sue had some scans – CT scan, X-ray, cat scan and bone density scan because the year before she broke three vertebrae in the accident, as you know.
She never got the results due to cancellations as a certain pandemic hit.
We wondered why the results were not passed on to her GP but the consultant said they were too important to give to the GP and had to be dealt with by themselves… But they were obviously not important enough to keep the three appointments!!!!.
Anyway, the consultant asked if Sue was sitting down, so Sue said she could cope standing up. The doc then said that Sue should start three new medications immediately as she has been diagnosed with osteoporosis and he was sorry but this diagnosis was made after his scans nearly 18 months ago.
It means she has missed out on 18 months of meds and it could cause permanent damage to her spine and other bones. Basically, he said that if she has a severe jolt to her body there’s a possibility of her spine being crushed and possible loss of feeling.
We have to take it one step at a time. But it does explain why she’s lost so much weight and her bones and muscles really play her up.
Waiting 18 months for results has meant that she’s lost 18 months of medication and her health has got worse.
That was the email which was forwarded to me.
If you remember, there was a reference to “If you think you are having a rough time with the NHS,…”
The rest of this blog is really an aide-memoire to myself.
Feel free to abandon ship.
I have been not 100% since I was hospitalised for a week last May with a high calcium level and dangerously low kidney function. I am still an outpatient with The Kidney Man at my local hospital. They only realised I had dangerous calcium/kidney problems by taking blood tests; all other tests showed no problem.
I am booked-in to see him again, in-the-flesh, on 14th June which is reassuring because I have not had a blood test since 19th October last year.
I was also supposed to have a telephone appointment with ‘the Respiratory Team’ at my local hospital last month – on 11th May. The appointment had been made by my Calcium Man way back on 30th November last year so, on 10th May, the day before the appointment, I thought it wise to check if it really was going to be in the flesh or by phone. In fact, the Calcium Man had asked for a Respiratory Team appointment on 27th November and it had taken to 2nd January to actually confirm an 11th May appointment in writing.
When I phoned, I was told the appointment had been cancelled altogether back on 21st February because there would be no doctor available on 11th May. I had never been notified of this cancellation. But I was told would not have to make another appointment as it was now “in the system”.
Obviously, the next day, I checked with the secretary to my Calcium Man’s secretary, who said she would sort it out.
So, on 20th May, I got two letters, both dated 18th May.
One told me my 11th May appointment had been cancelled and I had a new appointment on 14th September. The other told me my 14th September appointment had been cancelled and replaced by a 9th August appointment. Both letters, as I said, were dated 18th May. Both arrived in the same post.
Now we reach the even-more self-obsessed bit.
I have had vertigo since January. Its seriousness comes and goes. When it is not serious, I just feel light-headed and not 100% in control of my balance.
Yesterday morning, just after midnight, for about an hour, without any warning, I had very very very bad vertigo… then with added bad diarrhoea, then with added vomiting.
After that, I managed to sleep for four hours, which was quite an achievement as, since coming out of hospital last May, I have not had a single full night’s sleep – I wake up at least once ever hour, very dehydrated.
Yesterday, when I did wake up – at around 0530, I was a bit better though, if I stood up, I was still dizzy and wobbly.
Mid-morning, a text arrived from the Kidney Team at my local hospital. My appointment with the Kidney Man on 14th June has been changed – “due to COVID19” – from a face-to-face meeting to a telephone call. “We will phone you in due course” it said.
This was – erm… – somewhat disappointing as it means no blood tests.
The Kidney Man had said when I talked to him by phone on 15th February that I would be contacted about a further blood test by one of two local hospitals, but I never was. That’s large bureaucracies for you.
Anyway, yesterday I was told my next ‘meeting’ with the Kidney Man would be by phone… so no blood test there.
That was yesterday morning.
Then, just after midday, the SEVERE vertigo came back, including my bedroom walls whizzing round, it appeared, both from right to left AND from left to right. Who knew this was possible? That only lasted for about half an hour and the rest of the day was just a bit wobbly inside my head.
This morning I feel a bit light-headed.
To be continued, I feel…
Though who knows when?