Tag Archives: renal sarcoidosis

Medical stuff, a fairground ride in my head and my normal abnormal…

After my recent jolly week in hospital, I seem to be back to my normal abnormal.

I try to go to sleep at night but it takes a bit of time. Then I wake up after two hours, go back to sleep and then wake up again every hour all the way through the night.

My normal abnormal.

Fortunately, I have not had serious vertigo (which I first had in January) since 1st June…

…until a couple of days ago.

In the afternoon I was feeling a bit unsteady. It was as if my brain were padded with suffocating cotton wool but I was also lightly swirly inside my head. So I went upstairs to my bedroom to lie down. 

When I did lie down on the bed, it was as if the soft brain tissue inside my head started whizzing round-and-round in a circle, faster and faster, parallel with the pillows… like a bicycle wheel or a fairground ride whizzing round and round, faster and faster, parallel with the ground but with centrifugal force trying to spin it off out of control and out of my head. 

I was able to stop this by lying on my left side not my right side, with my left ear on the pillow instead of my right ear; and by sitting up.

Around teatime, I was standing vertically again, so OK and went out thinking fresh air might help, but was a little wobbly inside my head, as if my brain were telling me it was not altogether in total control of how my feet worked nor safe controlling my overall balance.

I went to bed around 8.30pm and got to sleep around 12.50am, then woke up around 2.50am with my tongue, the roof of my mouth, the insides of my cheeks and my throat all parched totally dry – no lubrication, no liquid of any type anywhere. And I woke up once every hour through the night with the same thing, having to drink water to stop the parched mouth.

So, as I say, back to my normal abnormal.

Going to the toilet, I was a little unsteady on my feet. Going from my bedroom door to the toilet door, I pass the top of the stairs and, for safety, made sure the ends of my fingers touched both the edge of my bedroom’s door frame and my toilet’s doorframe, just in case I toppled into the gap between and fell down the stairs.

Swings and roundabouts, though.

There are the dreams.

For most of my life I went to sleep very fast at night and slept soundly, waking very slowly in the morning. What this seemed to mean in practice was that I was never aware of having dreams. Perhaps once every six or nine months if I was awoken in mid-dream by something like a noise or whatever.

So I think back then, because I went into deep sleep quickly at the start of the night and took a long non-deep-sleep time to wake in the morning, I never remembered dreams.

I always wished I could remember my dreams, because I like surreality.

Now, waking up virtually every hour throughout the night, I sometimes do remember the dreams. But they are not surreal. They are realistic, narrative and linear.

Swings and roundabouts.

Perhaps now, when I’m awake, it feels surreal. And, when I’m dreaming, it seems real.

The kidney doctor is phoning me tomorrow.

Their latest guess is it might be renal sarcoidosis but, as this has been going on for around fourteen months – since at least June last year – that’s just another guesstimate to explore.

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Filed under Medical, Psychology