… CONTINUED FROM DIARY No 39…
SUNDAY 18th OCTOBER
My friend Lynn popped in to see me as she was on the nearby M25 motorway. She hadn’t seen me for a month and told me I looked better than the last time.
I mentioned that, twice when I was in hospital in May, staff had thought I was very anxious when, in fact, I was not remotely: I was totally calm and relaxed. Lynn told me my wittering comes across as nervousness.
I remember once walking across an open plan office at Granada TV in Manchester and someone asked: “What on earth has happened, John?”
Apparently I looked as if my entire family had been killed in a sudden air crash or a freak attack by a rogue herd of rabid wildebeest. In fact, I was particularly relaxed, happy and at ease with the world.
To quote Rabbie Burns:
O wad some Pow’r the giftie gie us
To see oursels as ithers see us.
MONDAY 19th OCTOBER
After a two-month gap, I saw my Kidney Man at the hospital again. He/they still have no idea what was/is wrong with me.
I am much the same. Waking up maybe 8 or 10 or 12 times every night with my mouth bone dry and having to drink water.
He told me my blood test results… My calcium level should be 2.2-2.6. Last time it had settled at a good 2.4 but it has gone up to a little over 2.6. My low kidney function, which should be 60+ and which was 19 when I was taken into hospital – rising to 33 a week later and, after a couple of months, to 44 – is now around 50.
He is booking me in for another appointment in 4 months but may move that if required and he will recommend I get seen by two other different specialists before then – a calcium man and an Ear Nose & Throat man.
Afterwards, I had a new blood test, the results of which I will presumably hear about in 4 months time.
TUESDAY 20th OCTOBER
This morning, unlike previous occasions, when letters took several weeks/months to arrive, I got a copy of a letter from the Kidney Man to my GP about yesterday’s meeting.
It said I had last been weighed in 2002 rather than 2020 and that my next appointment would be in 2 months not 4 months. Attention to detail is always reassuring in someone who is diagnosing me and who may, at some point, perform surgery on me.
Later in the day, a notification flashed-up on my iPhone from the NHS coronavirus Track & Trace app saying I had maybe been exposed to COVID-19. It was followed immediately by another notification to the effect that they had checked and I could ignore the whole thing!
This seems a very ineffective notification system. No idea when/where/how it occurred. (Though I was inside a hospital yesterday). And seemingly designed to give old people with paranoia a jolt big enough to trigger a heart attack.
Track & Trace sounds like the name of a more successful female pop duo of the 1980s.
WEDNESDAY 21st OCTOBER
I woke up even more than normal last night – maybe 15 times. Mouth bone dry. Needed to drink water.
My eternally-un-named-friend e-mailed me to say:
Yesterday I saw an elderly woman stripped to the waist washing her armpits at the sinks in the toilets at Canary Wharf.
She apologised to me, saying it was because she was hot.
I said: “No need to apologise,” and offered her a few of my tissues to dry herself off with. She also helped me locate a tap with running water as the first two didn’t work when you waved your hands underneath. It was like being at school. It was heartwarming.
She looked quite fit for her age. Well, for any age. It did help that she was slightly slim
I wonder what her story was.
Maybe she just didn’t have hot water at home or maybe she was homeless, though she didn’t actually look that rough with bags and stuff.
I saw a woman maybe last year in the toilets at Marks & Spencer in Oxford Street. And you could tell she was a street homeless person.
THURSDAY 22nd OCTOBER
Aha! That letter I got on Tuesday from the Kidney Man… the one which arrived so quickly… was NOT from the previous day’s consultation! A duplicate of the letter arrived today with an extra sheet on the back.
It was written on 7th October about my meeting with him on 3rd August, modified on 14th October, printed on 20th October and presumably posted on 20th October (although I actually received a copy through the post on 20th October). So bureaucracy at work and all the details to my GP are 2 months out of date.
I also got a separate letter this morning – from Bristol – about my next appointment with my Kidney Man – in London – on 15th February next year… so the 4-month gap between appointments was true.
FRIDAY 23rd OCTOBER
Last night I woke up less often than normal – maybe 5 times – with a bone dry mouth, having to drink water.
In the afternoon, Ariane Sherine‘s 9-year-old daughter was telling me about a woman who is addicted to eating bricks… and how cuttlefish hypnotise crabs. Both true.
It was an educational journey.
Later I received an email telling me that (after a complaint) YouTube have admirably put an age-restriction on one of the videos I posted 14 years ago – unsurprisingly one featuring the late Malcolm Hardee – though, mysteriously, there is no hint what the age restriction is… I think Malcolm would have been shocked not by the age restriction but by the fact it took 14 years to happen…
SATURDAY 24th OCTOBER
I am thinking of seeing my excellent Chinese doctor, as the NHS are not really getting anywhere on figuring out what caused my calcium/kidney problems nor why I am waking up dehydrated maybe 10-12 times every single night with a bone-dry mouth.
My Chinese doctor is not cheap. But he has always been value for money.
On my mobile, there was a notification which said: Your iPhone continues to look for possible exposures on your behalf.
When it was pointed out to me that this was a message about the COVID-19 Track & Trace app, I felt strangely disappointed.
British Summertime ends tonight and the clocks go back one hour.
I received a message from my eternally-un-named friend:
… TO BE CONTINUED …